Saturday, 13 October 2012

Updated Support Group Dates


CONNECTING FAMILIES

 

“Sometimes, reaching out and taking someone’s hand is the beginning of a journey.  At other times, it is allowing another to take yours”

-Vera Nazarian

 

Support group and information sharing for caregivers of children living with Cystic Fibrosis


Drop-in Sessions


October 10th

January 9, 2013

March 13th

May 8th

July 10th

 

7pm-8pm

Location: Alberta Children’s Hospital – on day located in CF Clinic for room details

Facilitated by CF Clinic, Alberta Children’s Hospital

Telehealth Video Conferences available upon request

 

PLEASE EMAIL JILL REDFERNWITH QUESTIONS OR FEEDBACK: Jillian.Redfern@albertahealthservices.ca

 

Wednesday, 3 October 2012

Connecting Families


The Kids

I thought it would be a neat idea for everyone to get to know the kids and their stories. So here is our story

My husband and I have twin girls Faith and Kaylee who are 4 months old. My daughter Faith was diagnosed with Cystic Fibrosis when she was 1 month old through the Newborn Screening. Her sister is a carrier, but does not have CF.At the time we did not know what CF was or what it meant for our daughter. However, through research and the Clinic at ACH we have learned a ton of information. When she was first diagnosed we were really sad, but quickly moved passed that. We have decided to have a positive approach and provide the best life for our daughter possible. We are getting involved as much as we can in hopes that with others we will find a cure.

Faith

My girls and I