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Wednesday, 24 October 2012
Saturday, 13 October 2012
Updated Support Group Dates
CONNECTING
FAMILIES
“Sometimes, reaching out and taking someone’s
hand is the beginning of a journey. At
other times, it is allowing another to take yours”
-Vera Nazarian
Support group and information
sharing for caregivers of children living with Cystic Fibrosis
Drop-in Sessions
October 10th
January 9, 2013
March 13th
May 8th
July 10th
7pm-8pm
Location: Alberta Children’s
Hospital – on day located in CF Clinic for room details
Facilitated by CF Clinic, Alberta
Children’s Hospital
Telehealth Video Conferences
available upon request
PLEASE EMAIL JILL REDFERNWITH QUESTIONS OR
FEEDBACK: Jillian.Redfern@albertahealthservices.ca
Wednesday, 3 October 2012
The Kids
I thought it would be a neat idea for everyone to get to know the kids and their stories. So here is our story
My husband and I have twin girls Faith and Kaylee who are 4 months old. My daughter Faith was diagnosed with Cystic Fibrosis when she was 1 month old through the Newborn Screening. Her sister is a carrier, but does not have CF.At the time we did not know what CF was or what it meant for our daughter. However, through research and the Clinic at ACH we have learned a ton of information. When she was first diagnosed we were really sad, but quickly moved passed that. We have decided to have a positive approach and provide the best life for our daughter possible. We are getting involved as much as we can in hopes that with others we will find a cure.
My husband and I have twin girls Faith and Kaylee who are 4 months old. My daughter Faith was diagnosed with Cystic Fibrosis when she was 1 month old through the Newborn Screening. Her sister is a carrier, but does not have CF.At the time we did not know what CF was or what it meant for our daughter. However, through research and the Clinic at ACH we have learned a ton of information. When she was first diagnosed we were really sad, but quickly moved passed that. We have decided to have a positive approach and provide the best life for our daughter possible. We are getting involved as much as we can in hopes that with others we will find a cure.
Faith |
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My girls and I |
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